Cindy's Cancer Blog

Cancer Blog Entries Archived by Date

2018 (5)

October (1)

Precancer ... cancer?? : Sorry I haven’t been on much. A lot going on with continuous UTI and heart issues... the valves ...

April (1)

Update on double mastectomy : hi. I want to thank Donna for updating everyone on my cancer.   Xoxo Had the surgery the 29th at M...

February (3)

Follow up to my breast biopsies : unfortunately I have breast cancer.  DCIS   In one breast and hyperplasia in the other    A lum...
Posted three pictures : I had to post my report for breast US in three sepetate pictures. Just wanted you to know xo ...
I’m in shock !!: I’m so shocked I can’t rememer last time I posted   But to update I went for another HRA in Ja...

2017 (7)

November (1)

Early bday gift : Last week had five year scan. All is the same from May.  Would of went a year but had few issues so...

October (1)

Five years: It's five years. Very happy. Dec will be 28 years for my Hodgkin's lymphoma   Yay!!!!  Celebratin...

August (1)

Under my photos : I posted two photos ( reports) under photos. Had to do it like that because it kept saying image was...

July (2)

Dr explained : Dr explained why no biopsy. Finally. He said HRA is using magnification. Using it he did not see any...
Procedure today : I've been missing ... sorry my mil had stroke on top of alzehemizers  my mom had/has a nasty viru...

May (1)

So upset and sad: Haven't been able to post dad was paralyzed had surgery doing better mother in law alzehemizers  ...

March (1)

Bad constipation ...Linzess anyone: Sorry haven been here. Parents and in laws needing much help.  Ive always been constoatrd. But now...

2016 (8)

November (3)

Test for muscles : hi went to colonrectal dr today. A few spots were a bit raw but no need for treatment.  Said anal l...
NED AND BDAY! : Since I had things posted in different areas I figured I'd condense. 😊   for some reason I coul...
Hi everyone :   Hi Helen thanks for reaching out to me.  Sorry to all I have not posted or commented much.  F...

June (2)

RESULTS PTH LEVELS: HI all. Got back the PTH INTACT Level that was 315 and should of been 72.... It is now 69 so assum...
PTH LEVELS: Sorry all I have not been posting. Trying to read what I can. A lot going on. Mother in law started ...

March (3)

Pet Scan denied three times: as I stated insurance companies suck.   They put in for scan denied. Put in additional paperwork de...
Insurance companies suck!!!!! ...sorry: late yesterday Brighams in Boston called to cancel Pet Scan. Blue crossed denied it. Now she said t...
It's been a few months: sorry I have not posted. Been a bit crazy here but I try to read all your posts and comment when I c...

2015 (27)

December (1)

Only normal to be nervous : after I posted a happy new year I went to the bathroom.... Stool covered in blood....water had blood...

October (2)

Bone density : I have had osteoporosis for a few years.  My dr did not want to treat yet.  She follows the Europe...
Question : do you count the years you are cancer free from your last day of treatment or from the first cat sca...

August (4)

Pondering over this for a month : curious question.  When I had ct scan over a month ago they saw 4 spots in lungs.  Could not say e...
Post ct scan visit with pulmonary dr:   So today I went to see my wonderful pulmonary doc.  Dr. Donat..who is the best!  He is the do...
Ct scan:   i was hesitating to post because after my scan Thursday I went to see my dr and he said.... Loo...
My update: hi haven't posted about my updates ..been so distracted...had heart cath....did the new way through...

July (2)

information: Any insight on benign papilloma polyp in upper esophagus and eosinophilic esophagitis? I dont under...
4th of July: HAPPY 4TH TO ALL! GOD BLESS OUR COUNTRY AND EVERYONE HERE ON BFAC AND THEIR FAMILIES! 🇺🇸🍷...

June (2)

very worried: Hi all. Gastro dr ordering a liver scan cause it was fatty in past. Plus belly is bloated.. Last on...
Really Tired of It All: i am really tired of it all.  It does not end.    No clear answer on anal pap, 16 stomach polyps ...

May (3)

To many issues now : anal area.  Still bleeding.  Doc says hold on surgery.  Try once a month treatment of fomaldyhide...
Mothers Day: HAPPY MOTHERS DAY TO ALL THE SWEET ANGELS HERE AT BFAC......sending lots of love hugs happiness and ...
Bleeding, treatment...Surgery?:   hi all....I hope you are all doing well, you are in my prayers...and those who are going through...

April (2)

Chronic Hashimotos : hashimotos is what's he ultra sound revealed.   Well at least I know why im puffy, tired, achy gain...
HAPPY EASTER: WISHING ALL OF YOU AND YOUR FAMILIES A VERY BLESSED AND HAPPY EASTER 🐰🐥🐣🐰🐥🐣 XO...

March (5)

Cancer...The Emperor of All Maladies: is on ch 2 tonight....WGBH 9pm to 11 pm est......may be just seen in RI and MA ...
THYROID: HI.  HOPE YOU CAN HELP ME OUT HERE...ESPECIALLY THOSE OF YOU WITH THYROID ISSUES....BEEN ON SYNTHR...
Test..went ok: ENDO went well.  The dr I did not like turned out to be nice.  Guess he had a bad day the first ti...
Tests: went for pelvic and transvaginal US today.  Wow was she rough. Had many but she had me in pain.   ...
Anal Pap:   these are the results..ATYPITICAL SQUAMOUS CELLS OF UNDETERMINED SIGIFICANCE ...FAVOR MILD DYSP...

February (6)

This Is Crazy: My stomach...it's been bothering me prior to my tests...but still is not right.....still distended.....
UPDATE POLYPS :   TODAY WAS AT DR FOR 2 hrs with fil.  He has lung cancer.  ThankGod stage 1.   From there went...
A LITTLE MORE INFO: There were 16 polyps in stomach... Called them inflamation polyps .  Half are out...other half next...
TEST DONE BUT TO BE CONTINUED: GROGGY BUT HERES WHAT I KNOW .....was not crazy about the dr. never met him..he barely said hello....
PREP: going tomorrow for ENDO and coloosopy.   Omg never expected it to be like this.  I have gone for t...
reports I posted today under photos: i never posted my actual pathology results ...but I did today because truthfully I dont understand ...

2014 (34)

December (5)

25th Anniversary😊:   Not my wedding anniversary...my Hodgkins Anniversary. It was 25 years on December 5 th and I thi...
Merry Christmas: MERRY CHRISTMAS  and Happy Holidays TO ALL MY FRIENDS AND THEIR FAMILIES!  I thank God for for le...
Something no right:      so last I posted about the atypitcal dyplasia cells.   Dr said don't worry we are watchin...
Anal Pap: Not what I was expecting.......I was hoping for ITS NEGITIVE....instead it's atypitical....mild DYSP...
Test Results: Hi all...looking for some opinions and your experiences.   This is where I'm at... lab saw blood o...

November (2)

Happy Thanksgiving: HAPPY THANKSGIVING TO ALL MY WONDERFUL FRIENDS ON THIS BLOG.  I AM SO VERY BLESSED TO HAVE ALL OF ...
Made it to my 53rd Birthday: Things got pretty rough and didn't think some days I wouldn't of seen my 52 nd birthday...but here I...

October (3)

NED ....98 percent sure: Hi everyone.  I went for ct scan of chest ab and pelvis.  My radiologist said no nodes showed up, ...
Today 2 yrs from last treatment : Today is two years from my last treatment.  😊 I'm happy but not making to much of it cause ct sc...
Iron: I need to take iron supplement.  That means upsets to ach and constipation .  Can anyone suggest o...

September (4)

Vitamins Especiallt iron and B12 and scans: Hi everyone....for those of you who understand what level is good or bad I have questions.   Vit B1...
Hmmm .....what issue will it be today?: 😊. I think that's how most of us feel while recovering from cancer...in particular my issue ana...
Hasomotios : Endro dr called today. Said thyroid scan show I have Hasomotios,,thyroid.  Symptoms weright gain.....
Weird..scary: I will get into everything next post but this is scary.  My hands.  In relaxed position fingers cu...

August (1)

Thank you: ~~~~For all my family & friends, whether close or casual...just because. It is one of the longes...

July (6)

UPDATE: FIRST THANK YOU TO ALL OF YOU FOR ALL THE POSTS!  I read each one and they all mean so much to me. ...
Bleeding still: Did ten days of hydrocortisone suppositories bleeding stopped. One day off and  tons of blood.   R...
UPDATE ON ATYPICAL CELLS : THE ORIGINAL MESSAGE WAS FROM MY COLORECTIAL DOCTOR.  HIS MESSAGE SAID ANAL PAP SHIWED ATYPICAL CEL...
HELP I AM SO SCARED: Colorectal doctor left message anal pap atypical cells maybe displasya??  What?   Precancerous cel...
More on proctitis: So as I posted last wed I had a treatment for proctitis. Monday I bled a lot when I went so dr start...
Radiation Proctitis: Hi everyone.  Updated post.   I've been so tired could not get up or do a thing......TSH is 0.2 s...

June (1)

Pins and needles: New issue....since June 8th I get tingling...pins and needles..numbness in toes feet calves for arm ...

May (3)

Excited and Sad: First the good news my son is graduating college Sunday.  BS in Kinesiology..cum laude.  So proud ...
Mri: Results of ankle mri ...tear in ligament and joint effusion. Foot dr was not in but PT read my repo...
Belated Happy Mothers Day...bad day: Hi sorry my wish is belated.  My dad was admitted to hospital on moms day.  Severe pain vomiting.....

April (4)

Assuming NED: Using the word assuming because report said there is a 3mm hypo dense  lesion in the inferior pole...
Quick update: Went for cat scan...neck to hipss then went to Dr D who is my radiologist he took a quick peek at ...
Can't relax or sleep: Yes I guess nerves kicked in...upset stomach and no sleep.....but I have back pain.....blood again.....
Update: Went for parathyroid scans because I had 3 PTH tests that came back elevated.   They said the parat...

March (1)

Frustrated: Hi. Trying to make this short. starting bleeding in January.  A few times.   Stopped.  Had appt ...

February (3)

Biopsies: Hi...your answers to my last post really got me thinking.   Miost of you said the dr said no to bi...
No one is on the same page: Hi all....hope you are doing well or the best you can!😊.  All of you in my prayers eac night!  ...
TO ALL OF YOU: ITS WORLD CANCER DAY!!   😄🌏😄🌏😃🌏 HUGE HUGS  TO ALL OF YOU TODAY AND EVERYDAY!!!...

January (1)

Everyday!: I know we probably have this problem.....being gassy...extremely gassy where I can't go out😳...bu...

2013 (23)

December (3)

2014: To my blog family...wish you all a Happy and Healthy New Year!  Blessings to all of you!  Hugs xo ...
Blood work: Is anyone good with blood test results?  Reading other posts I see others having problems with regu...
Merry Christmas: Wishing the best group of people ever a VERY MERRY CHRISTMAS .... HAPPY HOLIDAYS ....... and A HAPP...

November (1)

Feeling Good: Went to doctor.....CEA was 1.3    WBC4.5. rbc3.85.   HMG 11.5 Dr said RBC and HMG still low woul...

October (3)

POSSIBLE NEW HEALTH ISSUE: Dr called today.  PTH is high.   Usually when pth is high calcium is low.....my calcium is in rang...
First melt down in awhile: Last two weeks very on edge.....don't know why.  Maybe cause im feeling tired my belly is always ...
Blood: Always a worry.  The other day blood on stool.  Today a lot of blood on stool.  The 11th is a ye...

September (4)

RESULTS: NED!😀😊😀😊😀😊😀😊  It's 11 months after treatment!  Cat scan .......the only th...
scared: Went for ct scan,,,,he came in said looking ok but things i cant read,,,,have to have radiologist lo...
Cat Scan: Last I posed cat scan was in three weeks.  Got a call today...it will be this Monday at 2.   Happy...
Updating: Hi......not much new news from last time.....bloodwork is still pretty good.   Only problems are th...

August (1)

Been to long: Hi all.... Been to long since I've posted....alot going on....dad hasn't been great.....I had ups an...

May (3)

Omg pain!!!: I am in so ,ugh pain it's unreal!  Doctor said this ould not be bad!   Thursday I had the procedur...
Biopsies Today: Hi everyone ... Just was catching up on some of posts ......  You are all still in my thoughts and ...
Hello: Is been awhile....busy with shower wedding puppy dad not feeling well and my appointments.  You all...

February (5)

Good results: Good news...the eight biopsies and small lump they took were negitive....cat scan was clean....the a...
Biopsy: Hi everyone All went ok today as far as IV .....the meds to go to sleep worked like a charm...had...
Can't wait till its over: Going to bed ...want tomorrow to be over so the results will come...going to be a long 7 to 10 days...
Thanks everyone: Hi...did not get anal pap results yet?? Not sure if that's correct name......it's been 10 days ...h...
Biopsy Tuesday: Hi everyone......so sorry I have not checked in sooner.....mom hurt her shoulder...dad having troubl...

January (3)

Hi...dr appt soon: Sorry I haven been posting....trying to get things together for my future sister in laws shower I'm ...
Few issues: Hi everyone...hope all is going well....sorry I haven't been posting....ups and downs and dad wasn't...
hello 2013 up date: Hi everyone ...sorry I haven't posted....thanks Nora for asking...lol I didn't get it...chemo brain....

2012 (73)

December (4)

Merry Christmas: I want to wish my special family a very MERRY CHRISTMAS ...... HAPPY HOLIDAYS .....AND A HAPPY AND V...
Appointment: I had to cancel.....he was running late..had emergency and I had appt for my fluids and look work. ...
Gyn tomorrow or wait: Tomorrow I have appt with gyn...it's my six months with him....I was going every six months since I ...
Bone scan: Hi all Thank you for your thoughts and prayers Bone Scan was normal Hospital didnt have it...

November (20)

Note: LDH IS NOT CHOLESTEROL .....THAT'S LDL LDH IS AN INFLAMMATION MARKER....it should be 91 to 232. ...
Not a great day: Blood work int coming back good LDH Was 180 on 11/1 now it's 250 Ferritin was 286 now 240 B...
Test test more test: Blood work went from 9 to 10.5. But everything was flagged on bloodwork today....could be iron, fe...
Doctors appt: Doctors have been watching myHGB and HCT.....it is dropping. Went from 14 to 9. Said it should of l...
HELLO: HAPPY THANKSGIVING TO ALL MY WONDERFUL FRIENDS FOR WHOM I AM SO THANKFUL FOR TODAY. WOULD NOT OF GO...
Sore ?? And dog therapy!: Two parts to this.... First...this is weird but we are taking about me....if its weird I get it.....
Appts being made: Breast mri will be approved next week so PROB going after thianksgiving....found mri that you go in ...
Pain: Spoke to radiologist today...said my pain is unusual...by a month after radiation the pain lets up.....
Ct scan: All I was told was its clear.....my other dr use to go over it with me...not complaining but this dr...
Hi Saw Cardiologist today for follow up: Saw dr today....having the shakes so bad and constant clammy sweats...my pjs and clothes get so wet....
Home: Got home early evening..... Dry heart is very low blood volume ...so the heart us dehydrated... ...
Tired sore but ok: Procedure was not until 2:00 Cardiologist did his procedure... Pressure in heart is good. Alittl...
Settled in: All settled in at hospital. On IV fluids and antibiotic for uti,,,,,dr Levine my cardiologist is doi...
THANK YOU ALL : Thank you all for my birthday wishes and well wishes Going in today around three They want me ...
Going into hospital tomorrow or Friday: Long post. Sorry.. Today went to doctors for fluids Took every ounce of energy to get ready ...
Dr appt updat: Went to rad dr....he just looked ...no DRE .....told him I burn when I urinate...said skin could be ...
PLEASE ALL READ MY POST TO CATHY UNDER MY BLOG SOMETHING'S WRONG: It was in response to cathys post to me....I should of posted it under a new blog instead of under s...
Something's wrong: You have all been wonderful...but something is very wrong with me Can't sleep for a week The pai...
Retesting a biopsy: Does anyone know if a biopsy can be retested? My biopsy was not tested to see if it was from HPV? ...
Why me lol: So when I was in hospital two nights ago they said potassium was low....3...they did not give me pot...

October (27)

Hi All....hospital: Back in hospital. Heart rate won't go down. That combined with shortness of breath, weak legs, han...
This is continued from last post: Dr called back he wanted to know if he was going to be doing biopsies or the surgeon. I said him. ...
Woke up to a message from colorectal doctor on a Sunday?: I slept late...husband working. Missed a call. It was colorectal dr. Saying are you staying with m...
I sound like a broken record but I had the worse day with doctors: Today I went for fluids and to see my oncologist.....he was running late so I left to go see colorec...
Tiny bit better...I will take it!: Alittle better Went for fluids Informed me ferritin was elevated to 300?????! That combined...
Trying something new: Doctor wants me to go for fluids three times a week...thinks I'm always dehydrated that's why I feel...
Trying....: Today went for fluids.... Had blood work....basically the same but everything dropped....I though...
Better..not better: Burns are 95% gone.....very happy.....anal area is sore....sometimes pain shoots through there...itc...
Liver tests: I posted my results from my bloodwork under the previous blog.....if you can look.....concerned live...
DO NOT READ IF YOU DON'T WANT TO READ HOW DEPRESSED I AM: My husband is so mad t me...I had an awful breakdown today.....I am so mad at my gyn...he knew I had...
Learned something today!: Yesterday the burns were good....I was like yes....recovery......today I started freezing again....s...
Home Saturday at 400pm: Dr let me come home Hemoglobin 11after two bags blood Rbc 3.2 Wbc 3000 Neutrophils 1.4 Fe...
Netrophils: Ok I calmed down about the other things now upset netriphils won't come up.......that was my fear fr...
One more rad tomorrow....falling apart: Been getting antibiotics ...two bags blood....I get so nervous when they give blood...they check on...
Went to hospital: Was freezing ...teeth chattering from midnight to 3am. Fever 100.2....the did nothing. Not one dum...
Two more to go: Did rad today..oh how one treatment can make it worse....the worse is the delicate female skin. It ...
Thought today would be better: Have to go back to radiation tomorrow😳. Can't imagine it. The creams just seem to make it wor...
Aveeno: Anyone soak in aveeno oatmeal bath for the burns? I'm soaking still in the salt but wish I had mo...
No sleep......abscess ?: Took oxycodone...may be allergic to it. Since I've been faithful and tsken it every four hours I'v...
Lidocaine?: Gel or cream ....I have like a liquid gel and it burns. Even when I mix with aquafour. Ouch. Fema...
Panic mode ....just anxiety: I know I'm almost done.... But I'm freaking out....I put aquafour with lidocaine but the skin heats ...
Didn't think that area could get any HOTTER!!: Wow the heat that's coming off that area is amazing....that's hot I have chills and a low grade temp...
Hemmorids?? Oh boy!........vitimans? Oxycodone? Food? Neuropathy ?: Did you deal with external hemroids also? Omg. I have two huge ones......I don't know if they give s...
Random question: Been done with chemo for three days ....second round......does hair continue to fall out for the nex...
I'm in so much pain: Laying here crying my eyes out....the burning and pain is so bad .....took Vicodin....need another.....
Problem with port....omg this cant be: Ok in hospital nurse could not flush port...she was pushing on that syringe with all her might...I w...
Silverdine cream: Do you just put it on thick...don't rub in right. Day was awful...could not stand...blurry vision...

September (16)

Thrush and mouth sores: They gave me duflucan in the hospital and two rinses...one was radiotherapy rinse and the other?? S...
Home but need advice with the burns: Ok home ,,,,,,thrush is bad but the mouth sores are kicking in too...awful But the real prob is t...
Home tomorrow I hope: This round was bad Thrush Couts low Severe headaches Very Burt Totally exhausted cant get up ...
Day 30...: Hi ....came in hospital....yesterday.....after being in hospital Sunday nite but no clots.. Sunda...
Hospital six hrs!!: It's about 2am Monday morning Went to hospital around six Sunday nite.....called dr....so hard to...
Day26 think I lost count somewhere?: Bad day...back hurts still....radiation.....burns are not super bad but what's there burns...gave me...
Day 23 wow how things change in a day: Overnite the burning is worse....everything is red and is so hot...I can feel the heat radiating off...
DAY 22 ....good and bad: Hi Went for blood work WBC 5.6 😄 Rbc 3.36 Hgb 10.1 Hct 29.9 PLT 223.0 Ly% 17.3 GR%...
IF I GET SICK NOW IT COULD POSTPONE CHEMO: Great....back still hurts.....yes getting nervous....of course I'm thinking cancer in the bone? Wok...
It's midnite so day 19: Went to get port checked as I posted to some of you already.....a stitch was pushing hru so they cut...
Day 18: Hi friends.....well Monday felt ok...tues and wed were very good ...today tired.....but I was happy ...
Day 15. Blood counts: Long day. Left 1130 home 500. Radiation and saw both doctors got IV fluid for hydration just to be o...
Day 13 low counts?: So am I at the low days...I thought dr said days 13 thru 19. Everyone hits it different. Am exhaus...
Day 11. Depressing post sorry: Wow so tired...I know everyone is different... Talked to radiologist today about being so tired....h...
Day 9 not so good: Radiation today...felt awful...weak....tired....diarrhea...small bouts...hips hurt....mouth sores st...
Day 6 going home: Going home ...never got sik...couple of times nauseous but meds helped. Got awful rash on neck whe...

August (6)

Third day in hospital: Third day ...day one and two went ok.....yesterday got verty tired...today extremely tired and stoma...
First day in hospital: Came in at 8am.....went right to radiation....came back. Took blood and hocked up to IV....will be...
5 FU and Mito C .....that's the chemo starting Monday.....: Hi everyone....thanks for all the responses and support. I just returned from the doctor. He said ...
Anal cancer: Port went in yesterday...did great....but so sore now. Ice helps....for a bit.....wow no shower for...
Anal cancer: Hi update ...port tomorrow....does it heal fast? Does it hurt when they use it....chemo and radiati...
Anal cancer squamous cell: Hi I'm new here. Scared just found out I have ansl cancer. Needing two rounds of chemo and radiati...
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Vital Info

Posts

August 8, 2012

Rhode Island

November 8, 1961

Cancer Info

Anal Cancer

Anal cancer squamous cell

June 23, 2012

Stage 3B

0.1 - 1.0 cm

Grade 3

Yes

Fluorouracil (5-FU)

Everything....and having it again..had hodgkins lymphoma 1989

You have to enjoy life

Two groin nodes and two iliac nodes

Rhode Island Hospital

October 11, 2013

Anal skin tag...burning..itching...cramps....constipation ....tired

Starting Aug 27th 5FU and Mito C

Pelvic radiation starting aug 27th

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